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Parent and adolescent perceptions of cystic fibrosis management responsibility: A mixed-methods study.

Katherine SouthArlene SmaldoneHossein SadeghiVictoria PianeRebecca KowalLeanna WeiMaureen George
Published in: Pediatric pulmonology (2023)
Adolescents and parents demonstrated differing perceptions of CF management responsibility, which may be related to a lack of communication between family members about this topic. To help facilitate alignment of parent and adolescent expectations, discussion of family roles and responsibility for CF management should begin early during the transition process and be discussed regularly during clinic visits.
Keyphrases
  • cystic fibrosis
  • young adults
  • primary care
  • healthcare
  • pseudomonas aeruginosa
  • mental health
  • physical activity
  • lung function
  • air pollution