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Impact on Diet Quality and Burden of Care in Sapropterin Dihydrochloride Use in Children with Phenylketonuria: A 6 Month Follow-Up Report.

Maria Inês GamaAnne DalyCatherine AshmoreSharon EvansAndré Moreira-RosárioJúlio César RochaAnita MacDonald
Published in: Nutrients (2023)
There were significant positive changes in food patterns, behaviors and burden of care in children with PKU and their families after 6-months on sapropterin treatment.
Keyphrases
  • healthcare
  • quality improvement
  • palliative care
  • young adults
  • physical activity
  • pain management
  • risk factors
  • affordable care act
  • weight loss
  • risk assessment
  • health insurance