Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease.

Karen J EaglesonDesiree McCombsTiffany M GerlichRobert N JustoNadine A Kasparian Samudragupta Bora

Published in: Journal of pediatric psychology (2023)

Studies vary widely in instruments used to assess psychosocial adaptation and outcomes among families of children with CHD. Instrument selection informed by robust key psychometrics, increased psychometric reporting, development of both a "toolkit" approach and a comprehensive CHD-specific family instrument are among key recommendations.

Keyphrases

systematic review
patient reported outcomes
young adults
mental health
meta analyses
emergency department
clinical practice