Selection by a panel of clinicians and family representatives of important early morbidities associated with paediatric cardiac surgery suitable for routine monitoring using the nominal group technique and a robust voting process.
Christina PagelKatherine L BrownIsobel McLeodHelen JeppsJo WrayLinda ChigaruAndrew McLeanTom TreasureVictor TsangMartin UtleyPublished in: BMJ open (2017)
The inclusion of patient and family perspectives in identifying metrics for use in monitoring a specialised clinical service is challenging but feasible and can broaden notions of quality and how to measure it.