REDCap and the National Mesothelioma Virtual Bank-a scalable and sustainable model for rare disease biorepositories.
Rumana RashidSusan CopelliJonathan C SilversteinMichael J BecichPublished in: Journal of the American Medical Informatics Association : JAMIA (2023)
NVMB presents a framework for integrating biobanks and patient registries to enable translational research for rare diseases.
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