Characteristics of patients contacting a center for undiagnosed and rare diseases.
Tobias MuellerAndreas JerrentrupMax Jakob BauerHans Walter FritschJuergen Rolf SchaeferPublished in: Orphanet journal of rare diseases (2016)
Pain-associated diagnoses and the typical "unexplained" medical conditions (chronic fatigue syndrome, fibromyalgia, irritable bowel syndrome) are frequent among people contacting a center dedicated to undiagnosed diseases. The chief symptoms are mostly unspecific. An interdisciplinary organizational approach involving mainly internal medicine, neurology and psychiatry/psychosomatic care is needed.
Keyphrases
- irritable bowel syndrome
- healthcare
- end stage renal disease
- newly diagnosed
- ejection fraction
- chronic kidney disease
- pain management
- chronic pain
- palliative care
- prognostic factors
- peritoneal dialysis
- sleep quality
- quality improvement
- case report
- neuropathic pain
- physical activity
- spinal cord injury
- spinal cord
- patient reported
- health insurance
- affordable care act