Patients' willingness to share digital health and non-health data for research: a cross-sectional study.

Emily SeltzerJesse GoldshearSharath Chandra GuntukuDave GrandeDavid A AschElissa V KlingerRaina M Merchant

Published in: BMC medical informatics and decision making (2019)

Patients in this study were willing to share a considerable amount of personal digital data with health researchers. They also recognize that digital data from many sources reveal information about their health. This study opens up a discussion around reconsidering US privacy protections for health information to reflect current opinions and to include their relatedness to health.

Keyphrases

health information
healthcare
public health
end stage renal disease
social media
mental health
ejection fraction
chronic kidney disease
newly diagnosed
big data
peritoneal dialysis
electronic health record
prognostic factors
physical activity
patient reported outcomes
risk assessment