Closed-Loop Neuromodulation and Self-Perception in Clinical Treatment of Refractory Epilepsy.
Tobias HaeusermannCailin R LechnerKristina Celeste FongAlissa Bernstein SidemanAgnieszka JaworskaWinston ChiongDaniel DohanPublished in: AJOB neuroscience (2021)
Empirical experiences of a clinical population being treated with closed-loop neuromodulation do not corroborate theoretical concerns about RNS devices described by neuroethicists and technology developers. However, closed-loop devices demonstrated an ability to change illness experiences. Even without altering identify and self-perception, they provided new cultural tools and metaphors for conceiving of epilepsy as an illness and of the process of diagnosis and treatment. These findings call attention to the need to situate neuroethical concerns in the broader contexts of patients' illness experiences and social circumstances.