Evaluating the Discriminatory Ability of the Sickle Cell Data Collection Program's Administrative Claims Case Definition in Identifying Adults With Sickle Cell Disease: Validation Study.
Ashima SinghMarci K SontagMei ZhouMahua DasguptaTessa L CrumeMorgan McLemoreNajibah A GaladanciEldrida RandallNicole SteinerAmanda M BrandowKathryn KochJoshua J FieldKathryn HassellAngela B SnyderJulie KanterPublished in: JMIR public health and surveillance (2023)
Adults identified as having SCD from administrative claims data based on the SCDC case definition have a high probability of truly having the disease, especially if those hospitals have active SCD programs. Administrative claims are thus a valuable data source to identify adults with SCD in a state and understand their epidemiology and health care service usage.