Longing for a Voice: A Qualitative Study.
Bilge Dilek SoyaslanGamze AlıncakNeslihan IlkazHilal ZenginPublished in: Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association (2024)
Tracheostomy involves a challenging care process in which both patients and caregivers have difficulty communicating. Loss of speaking ability negatively affects caregivers as well as patients. The objective of this study was to examine the experiences of caregivers of patients with tracheostomy during care and after the first vocal exercise. This is a qualitative interview study using in-depth interviews. We used Colaizzi's method of data analysis. The interviews were carried out with 17 caregivers from March to July 2023. Two main themes were identified: the communication process and the first time hearing the patient's voice. In addition, communication techniques, difficulty in communication, providing motivation, and emotions were considered as subthemes. A better quality of care can be provided by understanding the experiences of caregivers of patients with tracheostomy, by sharing feelings and thoughts, and by using patient-specific communication methods.
Keyphrases
- palliative care
- end stage renal disease
- healthcare
- ejection fraction
- chronic kidney disease
- newly diagnosed
- quality improvement
- data analysis
- mental health
- peritoneal dialysis
- pain management
- prognostic factors
- mechanical ventilation
- high intensity
- physical activity
- case report
- patient reported outcomes
- affordable care act
- acute respiratory distress syndrome