Patient-reported quality of care in primary sclerosing cholangitis.
Martine WalmsleyDávid TornaiNora CazzagonAngela LeburgueAnna MrzljakHenrike LenzenMarco CarboneJoão MadalenoAna LleoNorman JungeChristoph SchrammAnnika BergquistPublished in: Liver international : official journal of the International Association for the Study of the Liver (2023)
Symptom burden in PSC is high, and the most important areas of improvement are disease monitoring with more widespread use of elastography, bone density scan and appropriate treatment for itch. Personalised prognostic information should be offered to all individuals with PSC and include information on how they can improve their health.
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