Practices and Barriers in Developing and Disseminating Plain-Language Resources Reporting Medical Research Information: A Scoping Review.

Avishek Pal Isabelle Arnet Bernice Simonne Elger Bernice Simone Elger

Published in: The patient (2024)

This scoping review maps current practices, recommendations, and patients' and the general public's preferences for PLR development and dissemination. The results suggest that making PLRs available to a wider audience by improving nomenclature, accessibility, and providing translations may contribute to empowerment and SDM. Minimizing variability among available guidance for PLR development may play an important role in amplifying the value and impact of these resources.

Keyphrases

healthcare
end stage renal disease
primary care
newly diagnosed
chronic kidney disease
ejection fraction
prognostic factors
peritoneal dialysis
mental health
autism spectrum disorder
adverse drug
patient reported outcomes
decision making
health information
social media