As we approach an era of potentially widespread consumer neurotechnology, scholars and organizations worldwide have started to raise concerns about the data privacy issues these devices will present. Notably absent in these discussions is empirical evidence about how the public perceives that same information. This article presents the results of a nationwide survey on public perceptions of brain data, to inform discussions of law and policy regarding brain data governance. The survey reveals that the public may perceive certain brain data as less sensitive than other 'private' information, like social security numbers, but more sensitive than some 'public' information, like media preferences. The findings also reveal that not all inferences about mental experiences may be perceived as equally sensitive, and perhaps not all data should be treated alike in ethical and policy discussions. An enhanced understanding of public perceptions of brain data could advance the development of ethical and legal norms concerning consumer neurotechnology.
Keyphrases
- healthcare
- mental health
- electronic health record
- big data
- resting state
- health information
- white matter
- public health
- depressive symptoms
- functional connectivity
- artificial intelligence
- physical activity
- emergency department
- single cell
- multiple sclerosis
- cerebral ischemia
- adverse drug
- genome wide
- decision making
- brain injury