Patient care in cystic fibrosis centers: a real-world analysis in Brazil.

Elenara da Fonseca Andrade Procianoy Norberto Ludwig Neto Antônio Fernando Ribeiro

Published in: Jornal brasileiro de pneumologia : publicacao oficial da Sociedade Brasileira de Pneumologia e Tisilogia (2023)

Brazilian CFCCs experience multiple problems, including inadequate staffing, infrastructure, testing, and medication supply. There is an urgent need to regulate the implementation of CF referral centers and an appropriate network structure for the diagnosis and follow-up of CF patients using optimal treatment recommendations.

Keyphrases

cystic fibrosis
end stage renal disease
primary care
pseudomonas aeruginosa
healthcare
newly diagnosed
ejection fraction
chronic kidney disease
lung function
mental health
prognostic factors
quality improvement
patient reported