Validation of the Parent-Proxy Pediatric Charcot-Marie-Tooth Disease Quality of Life Outcome Measure.
Tong Tong WuRichard S FinkelCarly E SiskindShawna M E FeelyJoshua BurnsMary M ReillyFrancesco MuntoniTimothy EstilowMichael E ShySindhu Ramchandrennull nullPublished in: Journal of the peripheral nervous system : JPNS (2023)
The parent-proxy version of the pCMT-QOL outcome measure is a reliable, valid, and sensitive proxy measure of health-related QOL for children aged 8-18 with CMT.
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