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An Ethnographic Study of Patient Life Experience in Early-Stage Parkinson's Disease in the United States and Germany.

Todd CarmodyRebekah ParkElisabeth BennettEmily KuretBeyza KleinÀngels CostaSimon MessnerAmelia Hursey
Published in: Neurology and therapy (2024)
This holistic, ethnographic approach to patient life experience provided five key thematic findings that complement insights from qualitative and quantitative datasets on early-stage Parkinson's disease. An enhanced understanding of how early-stage Parkinson's symptoms impact patients' health-related quality of life and their broader social lives can help us better understand how patients make decisions about their usage of healthcare services and therapies.
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