Spinal muscular atrophy: Surviving respiratory failure, intensive care and pursuing creatively fulfilled life.
James Wesley Ching Hei ChengKwan Yi LaiShirley W L YamKaren Ka Yan LeungLilian P Y LeeKam Lun Ellis HonPublished in: Pediatric pulmonology (2022)
Children with SMA and their families need to be supported by a comprehensive multi-disciplinary team to manage this illness. Pediatricians and healthcare givers must provide up-to-date health advice on COVID-19 prophylaxis and management to special groups of patients with respiratory and neurological risks.
Keyphrases
- respiratory failure
- healthcare
- extracorporeal membrane oxygenation
- coronavirus disease
- mechanical ventilation
- sars cov
- human health
- public health
- young adults
- palliative care
- health information
- mental health
- risk assessment
- quality improvement
- intensive care unit
- respiratory tract
- blood brain barrier
- subarachnoid hemorrhage