Login / Signup

Predictors of participation restriction over a 9-year period in adults with myotonic dystrophy type 1.

Kateri RaymondMélanie LevasseurBenjamin GallaisLouis RicherLuc LabergeÉmilie PetitclercJean MathieuCynthia Gagnon
Published in: Disability and rehabilitation (2020)
The majority of predictors of participation restriction can be advantageously modified by rehabilitation and environmental changes, such as politics targeting community services provision or physical environment and services accessibility.Implications for rehabilitationPredictors could better inform rehabilitation professional to recognize individuals at risk of higher participation restriction over time and to target specific interventions based on a prognostic approach.Rehabilitation professionals could inform the people living with myotonic dystrophy type 1 and their relatives of the multifactorial nature of occurrence of participation restriction to diminish the "fatality" associated with a genetic progressive disorder.Predictors allow professionals to assess and intervene in the management of specific factors depending on the rehabilitation goal.Identifying individual with myotonic dystrophy with higher risk of participation restriction could help implement a long-term community based rehabilitation intervention plan targeting both personal and environmental factors.
Keyphrases
  • physical activity
  • healthcare
  • mental health
  • early onset
  • primary care
  • multiple sclerosis
  • muscular dystrophy
  • cancer therapy
  • risk assessment
  • palliative care
  • duchenne muscular dystrophy