How the characteristics of pediatric neurologists in Latin America influence the communication of sudden unexpected death in epilepsy to patients and caregivers.
Viviana VenegasCarla ManterolaJose De PabloMariano GarciaSonia Ponce de LeónGabriel CavadaPublished in: Epilepsia open (2022)
Although most PNs agree that communication about SUDEP is relevant, only a minority actually engages in it. Participants identified a lack of appropriate training in such communication as a barrier. A better understanding of communication expectations, education of health professionals, and communication techniques have a strong relevance in diminishing the gap between guidelines and practice.