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Parents' Experience of Administering Vosoritide: A Daily Injectable for Children with Achondroplasia.

Sinead NiMhurchadhaKaren ButlerRob ArgentKatja PalmGenevieve BaujatValerie Cormier-DaireKlaus Mohnike
Published in: Advances in therapy (2023)
Parents and children are resilient to challenges posed by a daily injectable treatment and highly motivated to improve their quality of life. Parents are prepared to overcome short-term treatment challenges for future gains in terms of health and functional independence for their children. Greater support could ensure they have the right information to initiate treatment and manage treatment at home, which will improve parents' and children's experience.
Keyphrases
  • young adults
  • public health
  • health information
  • risk assessment
  • current status
  • mental health
  • social media
  • tissue engineering
  • health promotion