A holistic approach to the patients/ Families with inborn errors of metabolism.
Peter BurgardPublished in: Journal of mother and child (2020)
The holistic approach is a joint project of the team of health care professionals and the person with a condition, allowing them to see the patient's individual medical, behavioral, social, legal, and economic context. For practical, technical, and economic reasons this will only be possible in centers caring for a critical number of individuals.