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A holistic approach to the patients/ Families with inborn errors of metabolism.

Peter Burgard
Published in: Journal of mother and child (2020)
The holistic approach is a joint project of the team of health care professionals and the person with a condition, allowing them to see the patient's individual medical, behavioral, social, legal, and economic context. For practical, technical, and economic reasons this will only be possible in centers caring for a critical number of individuals.
Keyphrases
  • healthcare
  • end stage renal disease
  • newly diagnosed
  • ejection fraction
  • chronic kidney disease
  • quality improvement
  • mental health
  • prognostic factors
  • palliative care
  • patient safety
  • case report
  • social media