"Care that matters": Family-centered care, caregiving burden, and adaptation in parents of children with cancer.
Carla CrespoSusana SantosAna TavaresÁgata SalvadorPublished in: Families, systems & health : the journal of collaborative family healthcare (2016)
This research suggests that the way parents perceive formal care, namely as being more or less family-centered, may influence the burden they experience as caregivers of a child with cancer and, indirectly, their adaptation. These findings highlight the relevance of gaining greater understanding of the interaction between the family and the health-care systems in the context of pediatric cancer.