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"Care that matters": Family-centered care, caregiving burden, and adaptation in parents of children with cancer.

Carla CrespoSusana SantosAna TavaresÁgata Salvador
Published in: Families, systems & health : the journal of collaborative family healthcare (2016)
This research suggests that the way parents perceive formal care, namely as being more or less family-centered, may influence the burden they experience as caregivers of a child with cancer and, indirectly, their adaptation. These findings highlight the relevance of gaining greater understanding of the interaction between the family and the health-care systems in the context of pediatric cancer.
Keyphrases
  • healthcare
  • papillary thyroid
  • palliative care
  • squamous cell
  • childhood cancer
  • young adults
  • lymph node metastasis
  • pain management
  • squamous cell carcinoma
  • risk factors
  • chronic pain