Parental Disease Specific Knowledge and Its Impact on Health-Related Quality of Life.
Luisa StaschJohanna OhlendorfUlrich BaumannGundula ErnstKarin LangeChristiane KonietznyEva-Doreen PfisterKirsten SautmannImeke GoldschmidtPublished in: Children (Basel, Switzerland) (2022)
Patient HRQOL and parental emotional wellbeing after pLTx are associated with positive self-estimation of parental disease-specific knowledge. Objective disease-specific knowledge has little impact on HRQOL. Parental education programs need to overcome language barriers and address self-efficacy in order to improve HRQOL after pLTx.