Survival models to support shared decision-making about advance care planning for people with advanced stage cystic fibrosis.
Negin HajizadehMeng ZhangMeredith AkermanNina KohnAnna MathewDenis HadjiliadisJanice WangMartin L LesserPublished in: BMJ open respiratory research (2021)
We have developed models predicting survival in people with incident advanced stage CF, which can be reapplied over time to support shared decision-making about end-of-life treatment choices and lung transplantation. These estimates must be updated as data become available regarding long-term outcomes for people treated with CF transmembrane conductance regulator modulators.