Health data hubs: an analysis of existing data governance features for research.
Celia Alvarez-RomeroAlicia Martínez-GarcíaMáximo Bernabeu-WittelCarlos Luis Parra-CalderónPublished in: Health research policy and systems (2023)
The analysis of the responses from health data hub respondents across Europe provided a list of the most frequent aspects, which concluded with a set of specific best practices on data management and governance, taking into account the constraints of sensitive data. In summary, a data hub should work in a centralized way, providing a Data Processing Agreement and a formal procedure to identify data providers, as well as data quality control, data integrity and anonymization methods.