Perspectives of adolescent girls with cystic fibrosis and parents on disease-specific sexual and reproductive health education.

Traci M KazmerskiKelsey HillOlga PrushinskayaEliza NelsonJonathan GreenbergSarah Ab PittsSonya BorreroElizabeth MillerGregory S Sawicki

Published in: Pediatric pulmonology (2018)

Adolescent girls with CF and their parents desire an online patient educational resource that normalizes SRH and enhances patient-provider communication around these topics. Creation of developmentally appropriate resources would facilitate improved health outcomes around this aspect of comprehensive care in CF.

Keyphrases

cystic fibrosis
healthcare
case report
quality improvement
primary care
palliative care
mental health
pain management