Needs management in families affected by childhood-onset dystrophinopathies.
Kristin M ConwayKaty EichingerChristina TroutPaul A RomittiKatherine D MathewsShree K Pandyanull nullPublished in: SAGE open medicine (2019)
Healthcare providers, public health practitioners, and policymakers should be aware of the many needs reported by caregivers, and focus on addressing gaps in provision of needed financial and psychosocial services.