Engaging young African American women breast cancer survivors: A novel storytelling approach to identify patient-centred research priorities.

Alice Fang YanSandra Millon-UnderwoodAlonzo WalkerCaitlin R PattenDebra NevelsKeith A DookeranRose HennessyMary Jo KnoblochLeonard E Egede Melinda R Stolley

Published in: Health expectations : an international journal of public participation in health care and health policy (2020)

Storytelling as a patient engagement approach can build trust in the patient-research partnership, ensure that patients are meaningfully engaged throughout the process and capture the diversity of patient experiences and perspectives.

Keyphrases

case report
african american
end stage renal disease
newly diagnosed
ejection fraction
mental health
social media
metabolic syndrome
pregnant women
polycystic ovary syndrome
health information
insulin resistance