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Agreement between proxy- and self-report scores on PROMIS health-related quality of life domains in pediatric burn survivors: a National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System Study.

Alyssa M BamerKara McMullenSteven E WolfBarclay T StewartLewis KazisCamerin A RenckenDagmar Amtmann
Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2021)
This study supports the use of pediatric proxy PROMIS depression, physical function, peer relationships, pain interference, and anger scales in pediatric burn patients. Although agreement was moderate to good, assessing proxy-report alone as a surrogate should only be considered when self-report is not possible or practical. Caregivers typically report slightly worse severity of symptoms than children across all domains.
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