Login / Signup

"A Question of Trust" and "a Leap of Faith"-Study Participants' Perspectives on Consent, Privacy, and Trust in Smart Home Research: Qualitative Study.

Mari-Rose KennedyRichard HuxtableGiles BirchleyJonathan IvesIan J Craddock
Published in: JMIR mHealth and uHealth (2021)
This study offers valuable insights into the perspectives of participants in smart home research on important ethical considerations around consent and privacy. The findings may have practical implications for future research regarding the types of information researchers should convey, the extent to which anonymity can be assured, and the long-term duty of care owed to the participants who place trust in researchers not only on the basis of this information but also because of their institutional affiliation. This study highlights important ethical implications. Although autonomy matters, trust appears to matter the most. Therefore, researchers should be alert to the need to foster and maintain trust, particularly as failing to do so might have deleterious effects on future research.
Keyphrases
  • health information
  • healthcare
  • palliative care
  • social media
  • big data
  • artificial intelligence