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Patient and Caregiver Experience With the Hope and Prognostic Uncertainty of Immunotherapy: A Qualitative Study.

Mary C BoulangerAyo S FaladeKelly HsuRobert K SommerAshley ZhouRoshni SarathyDonald LawrenceRyan J SullivanLara N TraegerJoseph Andrew GreerJennifer S TemelLaura A Petrillo
Published in: JCO oncology practice (2024)
Patients and caregivers held optimistic expectations of immunotherapy, which resulted in heightened disappointment among the subset with progression or toxicity. Clinicians should elicit information preferences of both patients and caregivers, as these may be disparate. Our results highlight the need to optimize prognostic communication and support for living with uncertainty among patients receiving immunotherapy.
Keyphrases
  • end stage renal disease
  • ejection fraction
  • newly diagnosed
  • palliative care
  • chronic kidney disease
  • peritoneal dialysis
  • healthcare
  • patient reported outcomes
  • case report
  • decision making