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Belgian rare diseases plan in clinical pathology: identification of key biochemical diagnostic tests and establishment of reference laboratories and financing conditions.

Nathalie Monique VandeveldePieter VermeerschKatrien M J DevreeseMarie-Françoise VincentBéatrice GulbisFrançois EyskensFrançois BoemerAndré GothotViviane O Van HoofCarolien BonroyHedwig StepmanGeert A MartensXavier BossuytLaurence RoosensJulie SmetHilde LaeremansIlse WeetsJean-Marc MinonKris VernelenWim Couckenull null
Published in: Orphanet journal of rare diseases (2021)
In the context of clinical pathology and rare diseases, this initiative enabled to identify unreimbursed analyses and to meet the most crucial financial needs. It also contributed to improve patients' management by establishing Belgian reference laboratories and foreign referral laboratories for highly-specific analyses and a permanent surveillance, quality and financing framework for those tests.
Keyphrases
  • end stage renal disease
  • ejection fraction
  • quality improvement
  • newly diagnosed
  • chronic kidney disease
  • public health
  • peritoneal dialysis
  • prognostic factors
  • healthcare