Understanding Daily, Emotional, and Physical Burdens and Needs of Parents Caring for Children with Type 1 Diabetes.
Heike SaßmannSu-Jong Kim-DornerVerena BerndtTorben BiesterAndrea Dehn-HindenbergBettina HeidtmannNorbert JorchEggert LilienthalNicole Nellen-HellmuthAndreas NeuKatja SchaafRalph ZieglerKarin LangePublished in: Journal of diabetes research (2022)
Despite parents reporting high emotional burdens in connection with diabetes care, HbA1c and the gender of the reporting parent were the only risk factors. As the child gets older, parents' daily and physical distress decrease but not the emotional burden. Diabetes training including regularly offered booster sessions as well as low-threshold interventions for mental health issues and practical self-care skills is recommended to provide continuous support for parents.