PATHFINDER-CHD: prospective registry on adults with congenital heart disease, abnormal ventricular function, and/or heart failure as a foundation for establishing rehabilitative, prehabilitative, preventive, and health-promoting measures: rationale, aims, design and methods.
Sebastian FreilingerHarald KaemmererRobert D PittrowStefan AchenbachStefan BaldusOliver DewaldPeter EwertAnnika FreibergerMatthias GorenfloFrank HarigChristopher HohmannStefan HoldenriederJürgen HörerMichael HuntgeburthMichael HüblerNiko KohlsFrank KlawonnRainer Kozlik-FeldmannRenate KaulitzDirk LoßnitzerFriedrich MellertNicole NagdymanJohannes NordmeyerBenjamin A PittrowLeonard B PittrowCarsten RickersStefan RosenkranzJörg SchellingChristoph SinningMathieu N SuleimanYskert von KodolitschFabian von ScheidtAnn-Sophie Kaemmerer-SuleimanPublished in: BMC cardiovascular disorders (2024)
The PATHFINDER-CHD Registry is poised to offer valuable insights into HF management in ACHD, bridging current knowledge gaps, enhancing patient care, and shaping future research endeavors in this domain.