Access to novel drugs and therapeutics for children and youth: Eliciting citizens' values to inform public funding decisions.
Cindy L GauvreauLisa WightMathushan SubasriAntonia PalmerRobin HayeemsAlysha CrokerJulia AbelsonBrent FraserYvonne BombardCharlotte Moore HepburnMichael G WilsonAvram DenburgPublished in: Health expectations : an international journal of public participation in health care and health policy (2023)
A patient advocate served on the steering committee of this study and co-authored this article. Key informants for the Citizen Brief included patient advocates and caregivers; a separate patient advocate reviewed the Brief before dissemination. Qualitative and quantitative data were collected from the general public and caregivers of children, with written consent.