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Epidermolytic ichthyosis: Clinical spectrum and burden of disease in a large German cohort.

Leonie FrommherzKathrin GiehlJosephine HofmannStefanie HuebnerKirstin KiekbuschTeodora SabkovaKira SüßmuthSvenja AlterIliana Tantcheva-PoórHagen OttJudith FischerCristina Has
Published in: Journal of the European Academy of Dermatology and Venereology : JEADV (2024)
The results emphasize the need for targeted interventions and comprehensive care strategies to enhance the quality of life for affected individuals.
Keyphrases
  • healthcare
  • palliative care
  • physical activity
  • quality improvement
  • cancer therapy
  • pain management