Epidermolytic ichthyosis: Clinical spectrum and burden of disease in a large German cohort.

Leonie FrommherzKathrin GiehlJosephine HofmannStefanie HuebnerKirstin KiekbuschTeodora SabkovaKira SüßmuthSvenja AlterIliana Tantcheva-PoórHagen OttJudith FischerCristina Has

Published in: Journal of the European Academy of Dermatology and Venereology : JEADV (2024)

The results emphasize the need for targeted interventions and comprehensive care strategies to enhance the quality of life for affected individuals.

Keyphrases

healthcare
palliative care
physical activity
quality improvement
cancer therapy
pain management