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"The chameleon among diseases" - an explorative view of sarcoidosis and identification of the consequences for affected patients and relatives using qualitative interviews.

Charlotte HilkerJohanna WeisStefanie ZiehfreundElizabeth V ArkemaTilo BiedermannAlexander Zink
Published in: Orphanet journal of rare diseases (2023)
The results provide new insights into patients' and relatives' perceptions of the sarcoidosis diagnosis and treatment process. Identification of barriers such as a lack of physicians and an information deficit highlights potential targets for strategies to optimize sarcoidosis management.
Keyphrases
  • end stage renal disease
  • ejection fraction
  • newly diagnosed
  • chronic kidney disease
  • primary care
  • healthcare
  • prognostic factors
  • peritoneal dialysis
  • systematic review
  • human health