"The chameleon among diseases" - an explorative view of sarcoidosis and identification of the consequences for affected patients and relatives using qualitative interviews.
Charlotte HilkerJohanna WeisStefanie ZiehfreundElizabeth V ArkemaTilo BiedermannAlexander ZinkPublished in: Orphanet journal of rare diseases (2023)
The results provide new insights into patients' and relatives' perceptions of the sarcoidosis diagnosis and treatment process. Identification of barriers such as a lack of physicians and an information deficit highlights potential targets for strategies to optimize sarcoidosis management.