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A web-based psychological support program for caregivers of children with rare chronic diseases: a randomized controlled trial.

Dunja TutusMandy NiemitzPaul Lukas PlenerJoerg M FegertChristine LehmannChrista WeissChristine KnaevelsrudLisa BiehlMiriam Rassenhofer
Published in: Orphanet journal of rare diseases (2024)
Our results underline the efficacy and feasibility of WEP-CARE for parents of children with various rare diseases.
Keyphrases
  • young adults
  • palliative care
  • quality improvement
  • healthcare
  • physical activity
  • affordable care act