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Needs of amyloidosis patients and their care providers: design & first results of the  A MY-NEED S research and care program.

Sandra Michaela Ihne-SchubertTeresa RadovicSaskia FriesStefan FrantzHermann EinseleStefan StörkSilke Neuderth
Published in: Orphanet journal of rare diseases (2024)
Patients with amyloidosis express particular needs that should appropriately be considered in specifically tailored care concepts.
Keyphrases
  • quality improvement
  • healthcare
  • palliative care
  • end stage renal disease
  • newly diagnosed
  • pain management
  • chronic kidney disease
  • affordable care act
  • peritoneal dialysis
  • prognostic factors
  • multiple myeloma