"When I was Younger, My Story Belonged to Everyone Else": Co-production of Resources for Adults Living with Craniosynostosis.
Nicola Marie StockBruna CostaWilliam BannisterCharlotte AshbyNammie MatthewsLouise HebdenLaura MellesZoe Hilton-WebbSally SmithKristian KaneLewis CarterAnna KearneyKatie PiggottCharlotte RussellKaren Wilkinson-BellPublished in: The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association (2024)
The resources developed represent a step forward in addressing the unmet information and support needs of adults with craniosynostosis and highlight the benefits of co-production in research.
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