Patient and Caregiver Perspectives on Terms Used to Describe Kidney Health.
Allison TongAndrew S LeveyKai-Uwe EckardtSamaya AnumuduCristina M ArceAmanda BaumgartLouese DunnTalia GutmanTess HarrisLiz LightstoneNicole Scholes-RobertsonJenny I ShenDavid C WheelerDavid M WhiteMartin WilkieJonathan C CraigMichel JadoulWolfgang C WinkelmayerPublished in: Clinical journal of the American Society of Nephrology : CJASN (2020)
The obscurity and imprecision of terms in CKD can be unduly distressing and traumatizing for patients, which can impair decision making and self-management. Consistent and meaningful patient-centered terminology may improve patient autonomy, satisfaction, and outcomes.