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Navigating the terrain of moral distress: Experiences of pediatric end-of-life care and bereavement during COVID-19.

Lori S WienerAbby R RosenbergBrian PennarolaAbigail FryMeaghann Weaver
Published in: Palliative & supportive care (2021)
The COVID-19 pandemic has had a profound impact on the provision of end-of-life care and bereavement for children, family caregivers, and PPC providers. Our results identify tangible limitations of restricted personal contact and the pain of watching families stumble through a stunted grieving process. It is imperative that we find solutions for future global challenges and to foster solidarity in PPC.
Keyphrases
  • chronic pain
  • young adults
  • pain management
  • current status
  • neuropathic pain
  • mental health
  • intellectual disability
  • palliative care
  • decision making
  • spinal cord injury
  • spinal cord