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How is autistic identity in adolescence influenced by parental disclosure decisions and perceptions of autism?

Ariana RiccioSteven K KappAllison JordanAnna Marie DorelienKristen Gillespie-Lynch
Published in: Autism : the international journal of research and practice (2020)
There is a lot of research about how parents think about their child's autism but we don't know much about how parents talk with their kids about autism. How parents talk with their kids about autism may shape how kids see autism. A team of autistic and non-autistic people (including a mother of an autistic person) did a study. We wanted to know if how parents talk with their kids about autism shapes how their kids see autism. Nineteen teens from a summer camp did interviews and surveys. Their mothers did surveys. Teens learned about if they had autism in different ways. Some teens still didn't know they were autistic. Teens whose moms chose to tell them about their autism talked about autism and themselves more positively than teens whose moms didn't choose to talk with them about autism. Only teens whose moms chose to talk with them about autism described themselves as having social strengths. Teens had a harder time defining autism than moms. However, teens and moms talked about autism in similar ways. Our study shows that parents can help their kids see autism and themselves more positively by talking with their kids about autism early in development.
Keyphrases
  • autism spectrum disorder
  • intellectual disability
  • healthcare
  • primary care
  • mental health
  • depressive symptoms
  • binding protein
  • quality improvement