Quality of Life in Ugandan Children and Young Adults After Surgery for Congenital Heart Disease: Mixed Methods Approach.
Chloe SearchingerHadija NalubwamaJafesi PulleRittal MehtaHilda TumwbazeRachel KyarimpaRachel MwimaEmily AtukundaBobson BuaRachel SarnackiMeredith G ShermanMichael OketchoMeghan S ZimmermanMiriam NakittoChristopher T LongeneckerAllison R WebelAmy ScheelPeter S LwabiCraig A SablePublished in: Global heart (2024)
Health-related quality of life was lower in Ugandan patients after CHD surgery than siblings. Younger patients and those who had surgery outside of Uganda had lower HRQOL. These data have important implications for patients undergoing CHD surgery in LMIC and have potential to inform interventions.
Keyphrases
- young adults
- end stage renal disease
- minimally invasive
- congenital heart disease
- patients undergoing
- newly diagnosed
- ejection fraction
- coronary artery bypass
- chronic kidney disease
- peritoneal dialysis
- physical activity
- patient reported outcomes
- study protocol
- coronary artery disease
- autism spectrum disorder
- intellectual disability
- electronic health record
- patient reported
- deep learning
- human health
- childhood cancer