HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD).

Noelle E CarlozziS G SchillingJ-S LaiJ S PaulsenE A HahnJ S PerlmutterC A RossN R DowningA L KratzM K McCormackM A NanceK A QuaidJ C StoutR C GershonR E ReadyJ A MinerS K BartonS L PerlmanS M RaoS FrankI ShoulsonH MarinM D GeschwindP DayaluS M GoodnightD Cella

Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2016)

HDQLIFE encompasses both validated Neuro-QoL/PROMIS measures, as well as five new scales in order to provide a comprehensive assessment of HRQOL in HD.

Keyphrases

patient reported outcomes