The experience of parents of children with rare diseases when communicating with healthcare professionals: towards an integrative theory of trust.
Beni Gómez-ZúñigaRafael Pulido MoyanoModesta Pousada FernándezAlicia García OlivaManuel Armayones RuizPublished in: Orphanet journal of rare diseases (2019)
Trust is the cornerstone of parent-doctor communication in the field of children with rare diseases. If the sources of trust are present, they create a degree of trust that bolsters both parties in the search for a common goal: providing the child with the best possible care.