Leveraging Social Networking Sites for an Autoimmune Hepatitis Genetic Repository: Pilot Study to Evaluate Feasibility.
Megan ComerfordRachel FogelJames Robert BaileyPrianka ChilukuriNaga P ChalasaniCraig Steven LammertPublished in: Journal of medical Internet research (2018)
Facebook can be an effective ancillary tool for facilitating patient-oriented research in rare diseases. A social media-based approach transcends established limitations in rare disease research and can further develop research communities.