Pretransplant Quality of Life and Post-Transplant Survival in Adolescents with Cystic Fibrosis.
Ruth BernsteinCourtney LynnAlbert FaroDavid BarkerAlexandra QuittnerPublished in: Journal of pediatric psychology (2021)
This study suggested that including patient-reported outcomes could aid pretransplant referral decision-making. The Respiratory Symptoms scale in particular may serve as a useful tool to help determine when to refer and evaluate an individual for transplant.