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Pretransplant Quality of Life and Post-Transplant Survival in Adolescents with Cystic Fibrosis.

Ruth BernsteinCourtney LynnAlbert FaroDavid BarkerAlexandra Quittner
Published in: Journal of pediatric psychology (2021)
This study suggested that including patient-reported outcomes could aid pretransplant referral decision-making. The Respiratory Symptoms scale in particular may serve as a useful tool to help determine when to refer and evaluate an individual for transplant.
Keyphrases
  • patient reported outcomes
  • decision making
  • young adults
  • primary care
  • physical activity
  • free survival