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Psychological distress and convergence of own and proxy health-related quality of life in carers of adults with an intellectual disability.

Sonya RudraAfia AliJ M PowellRichard P HastingsVasiliki Totsika
Published in: Journal of intellectual disability research : JIDR (2023)
Carers experiencing more psychological distress tended to rate their own and the care recipients' subjective HRQoL more similarly. Objective HRQoL measures did not show this convergence in scores with increasing carer psychological distress. Findings differed when the analysis approach was changed, suggesting the results above require replication in future studies.
Keyphrases
  • intellectual disability
  • sleep quality
  • autism spectrum disorder
  • healthcare
  • palliative care
  • quality improvement
  • current status
  • physical activity
  • data analysis