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Mapping parents' journey following prenatal diagnosis of CHD: a qualitative study.

Kelly W HarrisCatherine M Hammack-AviranKathleen M BrelsfordAnn Kavanaugh-McHughEllen Wright Clayton
Published in: Cardiology in the young (2022)
To enhance effective communication and support, understanding how parents conceptualise hope in relation to diagnosis and how that may evolve over time is critical. Expectant parents whose child has a significant risk of mortality may demonstrate hope by focusing on positivity. As prognostic uncertainty diminishes postpartum, the parental role on the team may shift, requiring clinicians to provide different support.
Keyphrases
  • palliative care
  • mental health
  • cardiovascular events
  • quality improvement
  • cardiovascular disease